Therapeutic decisions in ALS patients: cross-cultural differences and clinical implications
Journal of Neurology, Neurosurgery & Psychiatry
Fecha de publicación: 04 May 2018
DOI: https://doi.org/10.1007/s00415-018-8861-4
Autores: Peter M. Andersen, Magdalena Kuzma-Kozakiewicz, Jürgen Keller, Helena E. A. Aho-Oezhan, Katarzyna Ciecwierska, Natalia Szejko, Cynthia Vázquez, Sarah Böhm, Gisela Badura-Lotter, Thomas Meyer, Susanne Petri, Katharina Linse, Andreas Hermann, Olof Semb, Erica Stenberg, Simona Nackberg, Johannes Dorst, Ingo Uttner, Ann-Cristin Häggström, Albert C. Ludolph.
Background: They were interviewed on preferences for therapeutic techniques including invasive (IV) and non-invasive ventilation (NIV), as well as percutaneous endoscopic gastrostomy (PEG) and on hypothetical termination of these using quantitative questions. Using standardized questionnaires, religiousness, personal values, quality of life, and depressiveness were assessed.
